Category Archives: Treatments

Challenges and triumphs for treating complex regional pain syndrome

The Terrible & The Fortunate

“I was born with an enormous need for affection, and a terrible need to give it.” – Audrey Hepburn I cannot recall a time when the happiness of others did not supersede that of my own.  My happiness has been … Continue reading

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Learning to Hope, Not Wish

“The doors we open and close each day decide the lives we live.” – Flora Whittemore   Everything has changed.  Everything.  Yet it’s the smallest of these changes that tend to bother me the most, such as my once naturally … Continue reading

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Taking the Long Way Home

Suffering Silently “The truth that many people never understand, until it is too late, is that the more you try to avoid suffering the more you suffer because smaller and more insignificant things begin to torture you in proportion to … Continue reading

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The Shades of Grey We Know

The Illusion of Colorlessness “Shades of grey wherever I go The more I find out the less that I know Black and white is how it should be But shades of grey are the colors I see.” – Billy Joel … Continue reading

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Fighting an Invisible Fear

The Struggle of a New Optimist “I like the man who faces what he must, With steps triumphant and a heart of cheer, Who fights the daily battle without fear.” – Sarah Knowles Bolton I’m not really certain whether I … Continue reading

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Some Surprises are Delightful

New Beginnings “Courage is not the absence of fear, but rather the judgement that something else is more important than fear.” – Ambrose Redmoon Some days are more difficult than others, though this last week was particularly hard.  I transitioned … Continue reading

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Remembering to March On

The Wars We Fight I’m normally in bed by now, but I found myself touched by a song today that I had somehow never heard on my playlist.  I’m moved by things that I love, and, honestly, there’s not much … Continue reading

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Physical Therapy and Weaning Off of Pain Medicine

“Pain is such an uncomfortable feeling that even a tiny amount of it is enough to ruin every enjoyment.” – Will Rogers Weaning Off Pain Medicine While in Pain This is my third time weaning myself off of pain medicine … Continue reading

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Mindy-Body Connections with CRPS/RSD: They Do Exist

The Big Day These days there’s a lot to celebrate.  Even during times of excruciating pain, there’s almost always light somewhere just waiting for me to grab at it.  Sometimes it hides in crevices.  Other times it shines like a … Continue reading

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Navigating Through the Struggles…(Life is What You Make of It)

The Struggle It Takes to be Human The beginning:  pain level 4.  This morning’s physical therapy session was challenging – I’m not going to lie.  I’m tough in therapy.  I execute each request, not always flawlessly but to the best … Continue reading

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Finding Hope: Not All Experiences are Equal

“The value of another’s experience is to give us hope, not to tell us how or whether to proceed.” – Peter Block How Do I Translate Personal Stories into Experiences I May Have? CRPS of the Right Foot The answer … Continue reading

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Walking: Painfully Awkward Moments

Baby Steps “All truly great thoughts are conceived while walking.”  – Friedrich Nietzsche At my age, I see a lot of friends posting pictures of their babies’ first steps online.  I’ve never really pondered what those babies must feel at … Continue reading

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Emotionally Disjointed: A Testament of the Highs and Lows of CRPS

“The optimist says we live in the best of all possible worlds and the pessimist fears this is true.” -Unknown Since I can remember, I have worn my heart on my sleeve. But since receiving the diagnosis, I can feel … Continue reading

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16 Hospital Bracelets & Other Tales of Success

Today we celebrate a number of small victories. Sweet 16 16. You are looking at my 16th hospital bracelet in 5 1/2 months. X-rays, MRIs, ultrasounds, surgeries: my supervisor at work refers to this as my “great adventure,” followed by … Continue reading

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Torture, Also Referred to as Treatment by Doctors

Spring is Here!

Newly blooming Bottlebrushes in our front yard: my prized plants!

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